Friday, May 31, 2013

A message from my husband....

Corry and I are sitting here getting ready for our walk tomorrow and looking over our site and we are completely overwhelmed by your generosity. When I sent out the email asking for donations in all honesty I felt bad about doing so and would have been completely fine with nobody donating. Much to my suprise you all have helped us raise over $3,400 in just a couple of weeks for what we of course think is the best cause out there, and as of a few minutes ago the donations are still coming in. I just wanted to say thank you one more time before we head out to the walk to everyone for helping us absolutely crush our goal and helping to ensure that things like the drug trial that has helped Charlie so much over the past 6 months continue to come available.

Fragile X is the number 1 inherited cause of intellectual disability. However, since the exact mechanism that causes Fragile X has been identified and since it is a genetic defect in a particular gene in the X Chromosome, it is curable and will eventually be cured, so your donations will not be wasted.

We have had a lot of ups and downs over the past couple of years as we found out about and began dealing with what is going on with the boys, and I can't express with words how much it means to find out that we have this much support. Thank you all not just for your donations but also for your kind words and for your thoughts and support.

Jeremy


http://www.crowdrise.com/CharlieMason

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