On our way home from Kennedy Kreiger today Jeremy turned Charlie's favorite song on for him. I'll never forget the day that Jeremy sat on Charlie's bed and opened the electric guitar with him. I thought it was over the top for Charlie. Until he started strumming and singing "Well I won't back down, no I won't back down, you can stand me up at the gates of hell and I won't back down." Jeremy and I just looked at each other in disbelief! And we realized right away it was from watching the movie Barnyard.
Anyway, it occurred to me, listening to this song, that this is the perfect motivational song for a boy like Charlie. Fragile X doesn't have him. He is still very much an individual. He is funny. He is talented. And and he is very cool. And there isn't a thing about him that I would change. I love him just the way he is. I know he will never back down. And I will be right there next to him cheering him on his whole life! Him and his brother! God bless them both. I love them to pieces!